Welcome.

This is the story of our daughter Emma. Her story begins with a rare birth defect called Gastroschisis. This space is dedicated to the days before her birth and the many that are sure to follow.

Monday, August 25th

Emma had another rough night. She changed rooms to accommodate another high risk baby, but we feel it ended up being for the best. Her new nurses are providing great care and attention. She was breathing well last night around 1am, but started to have weezing and labored breath at 3am. The nurse did a chest x-ray, which turned out negative, and assessed her status. I stepped out at 3am for a coffee, but the cafeteria had already closed. I thought there was a vending machine in the basement, so I took the elevator. No vending machine. I ended up getting stuck because the elevator would only go to the 1st floor (of course, I didn't know that, so I pressed buttons for minutes without result. Luckily a custodian let me in on the secret after 5 minutes on my own. Never crossed my mind to take the damn stairs!)

They increased her o2 level. She also may have some swelling in her lungs, but we'll see. She's had a few lucid moments in between being asleep and writhing in pain. They are moments like being in the eye of a hurricane. A time to rest, reflect, and prepare again.

1 comments:

kandi said...

just hoping all is well (as well as it can be). haven't heard anything in a few days. though,i know all too well how busy you are. still praying every day for her. tell ashley i'm thinking of her.

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