Welcome.

This is the story of our daughter Emma. Her story begins with a rare birth defect called Gastroschisis. This space is dedicated to the days before her birth and the many that are sure to follow.

Sunday, July 27th

Her name is Emma.
We meet with the doctor tomorrow and still have unanswered questions. Despite last week's successful ultrasound there remain many obstacles. Will the induction date be moved out in order to allow her to grow as much as possible? Her bowel being exposed to the harmful amniotic fluid may not be as important as her overall growth in weight and length. There's a natural hesitancy to not believe a doctor, no matter how qualified, when it comes to the health of your child. You are their guardian, their protector, and speak or take action for someone who cannot for themselves.

We've become fond of the Duke staff and know many now by their first names. Not unusual I suppose given the frequency of our visits. However, with a rare complication like Gastroschisis it's not unusual to hear dissenting opinions. It is important to have a doctor whom you trust the most, though for many it may only be a degree of trust, in order to be more confident in your decisions. For us, Dr. Heine has been a great source of strength and confidence. He has a soft spoken, gentle delivery that is chock full of levity. It's not often that someone has recommended to me to go home and watch the movie Harold & Kumar - and mean it. 

Dr. Heine
We meet a new doctor tomorrow, Dr. Small, so we are a little wary of any insight she may offer without a second opinion. Ultimately, we're sure to bounce whatever she says off of Dr. Heine.

The weekend has come to a close. Tomorrow we will be only three weeks from the induction. We have come a long way since first hearing about Emma's condition in February. It's at a time like this that I look to Harold & Kumar for perspective, "Did Doogie Howser just steal my car?" 

2 comments:

Tatum said...

Devlin and Ashley,
We are so thankful that you are with such an amazing staff at Duke. We will pray for your doctors and for your discernment on the induction date for Emma. With Love, Tatum and crew

Christopher said...

"Paging Dr.'s Small and Heine. Small, Heine please call the front desk."

    Emma's Birthday

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